Well I am going in for the contrast portion of my brain MRI & praying this time they can get a vein! I have to be sedated for MRIs because I am claustrophobic & the thought of a needle makes it even worse! My retina specialist asked if anybody in my family has MS (my uncle did, he died in a nursing home at 39 yo) and mentioned white matter lesions & insisted I return for the MRI completion.
Next week the wait is finally over! I am going to see Dr. Afrin in Minnesota for mast cell activation disorder. Right now I have it as autoimmune urticaria. Thing is, while my skin is doing better, nothing else is doing better. I have been waiting months for this appt! I hear he is such an awesome doctor & that he is very understanding.
My hip is doing better. My bursitis is worse however. The nerve pain is finally almost gone! After about 5 weeks of suffering my PT tried the EMS (? i think that's it, similar to a TENS) above the pain & below the pain and it started getting better the same day. I have been doing my TENS at gome as well.
I will be seeing a new neurologist next month. I will see my surgeon in 6 weeks & get the MRI ordered for my knee, probable ligament reconstruction.
I am really upset that my compounded medication is no longer covered by my insurance. I was reading that they apparently tried to stop covering all compounded medications, that is ridiculous. Apparently I also owe about $2,000 for pharmacogenetic testing! I called them with the CPT code & was told I didn't even need a prior auth & yet now I am told it's not covered & is unappealable!
I have been low on spoons this week. I have a pinched nerve in my neck for 3 days so far. No matter how I stretch it's not getting better. I want to try my TENS unit but I don't know to place the pads.
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