Aquatic Therapy

Today was my first aquatic therapy appointment.  Basically walking & exercises in the pool, similar to the land ones.  Except no planking!!! Those were killer!!!

I asked my doctor back in March for the referral & didn't get called by PT until last week... ridiculous.  Not sure what happened.  My first appointment was done all wrong & they sent me to the wrong place.  Both therapists are very nice, one is a bit more lenient than the other.

I was going to a chiropractor for my TMJ disorder.  I would have to say it was not worth the cost, I had to pay 100% and every thing was so short term.  Still continuing hand therapy & will do PT for a few weeks.  Not much else I can do really.

I think I am lucky that I just have the joint problems & not any organ problems & severe stomach issues I read about, often associated with EDS.  I just have to prevent injuries, try to eat even better (I have been a vegetarian for 2 years now) and strengthen whatever muscles I can to help keep stuff in place... although that is doubtful!

Finger splints

I don't understand why nobody ever told me about these before. For 35 years I never heard of a finger splint, saw it on another blog about EDS. Probably would have been helpful all this time.  Now I have plastic ones, not so comfy.

plastic

silver

I just got my silver splints today.  They gave me swan neck splints for my thumbs & pinkies.  I think the boutonniere ones would work much better for my pinkies though.  It doesn't quite hit my DIP joint, like the plastic ones barely did.

It was rather easy to get them approved, which amazes me since my insurance has not been helpful.

I also got accepted for genetic testing.  I wrote back about my denial letter, because it did not make sense.  I got a call that I can then make an appointment.  Yay! It won't be until October.  I have to drive 5 hours, get a new referral (will expire by then), and hope my rheumatologist doesn't ruin it all for me.