I am getting on a plane today, after all these months of waiting my turn, to see Dr. Afrin at UM. My husband asked if I was excited. I said that doesn't seem like the right feeling. Not sure what I feel really. I just know I want answers & a better treatment plan. Right now my diagnosis is autoimmune urticaria. The doctor felt that as long as I don't have a rash then I am being medicated properly.
Reading Dr. Afrin's book I feel that more of my symptoms could be controlled better with different medications. I believe more symptoms can be attributed to MCAD/MCAS.
Things like
-hair loss
-stomach pain, nausea
-headaches
-tinnitus
-nose pain/burning
-abnormal blood work that indicate viral infections, but they subside the same day or next day
My flight has been delayed, luckily I found that out before going to the airport.
I hope this appointment is productive & that I am not wasting his time. I hope he can suggest something new & not just tell me the same things that other doctors have told me. I really want answers & a treatment that helps me feel better. I also he he can help me get my medications compounded since my insurance has changed their coverage & make it hard for anything to get covered any longer!
No comments:
Post a Comment