I never claimed to have proper grammar, btw. I have had too many head injuries & have spelling issues now, so I do my best...
I was allotted an hour at the rheumatologist, but got less, of course. He brought out a little piece of paper that listed the Beighton scoring & I score a 7/9 as always. He verbally told me EDS type III. On my paper & my chart it now says "hypermobility of joint" not even jointS!!! Not even hypermobility syndrome or whatever else they want to call it. He also put fibromyalgia. What makes me even more upset is the fibro was added after I life, it is not on my summary, just online. He lied to me basically, typical!
He told me to exercise & gave me an anti-depressant medication... this sounds all too familiar... at least it's not an hour of weight training like crazy lady told me to do.
Like I said, I did not have high hopes. One day when they do figure out how to diagnose EDS III using genetics, I would really like to pay a few previous doctors a visit. Maybe I can make a bunch of custom balloons that say "you were wrong" or "Thanks for the misdiagnosis." Maybe a cake with my genetic results on it... I have some time to think about it.
I had to drive almost a state over to find out nothing. I am achy, tired, sore, popping, and now aggravated. Didn't give me an answer for why my finger swelled & turned purple. Didn't run any new tests because the ones from last year were ok with him & the one's last month while I was on steroids are apparently also good enough.
Medical bills, time, energy, gas, etc all wasted, that's how I feel. I have a follow up appointment with him, but doubt I will keep it. I don't know if I should even bother going back to my regular doctor. I guess I will get my referrals for therapy & just be done with this. I might as well go back on the other insurance & stop wasting all this money.
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