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Tuesday, March 24, 2015

Anxiety over rheumatology appointment today

I have anxiety over everything...

My appt with my new rheumy isn't for a few hours.  I don't have much in terms of expectations because I am highly doubtful I have any other conditions that would require him.  The last one I saw, about a year ago, said he would not send me for any further testing to determine EDS type.  He said it's all the same & won't change anything.  He gave me Cymbalta & said that was all he could do for me.

I won't even start on how that medication affected me, except that I only lasted a few days on it & the withdrawals were just as horrible!  I also took Lyrica, in the past, another one that I just could not tolerate.  I have been trying more natural remedies, things like essential oils & making my own daily products naturally; has not been helping unfortunately.

I asked my orthopedic doctor for a referral to aquatic therapy, he said he doesn't think it will help & that I need to do regular PT to strengthen my muscles around my knees.  I have done PT many times & I always end up in pain & stop going.  Well, the place he sent me to is not a provider.  I checked my insurance account online & it changed to another facility, that I did not see aquatic therapy offered.  Then a 3rd place popped up instead.  It was the same place I went before, that he sent me in December & I never went.  They don't offer aquatic therapy either.  I called my insurance to get it changed & they said they can't change it.  I was very upset, I said you had changed it twice already & now you can't????

Luckily I got an e-mail reply from my ortho office saying they had changed it to the place I requested.  I don't know what I should do or who to see really.  But I have to start somewhere & my thought is that aquatic therapy will be a good start & shouldn't hurt me enough to cause me to stop, like PT always has.  This facility also offers physiatry, I am curious about that.  I am also asking for the hand therapy place.

I feel like that's about all I can do.  Bracing, low impact exercise, specialists.  Now that I have changed my insurance & have more choices & freedom, I think I need more people that specialize in specific parts of the body.  It seems like pills don't bring much benefit for me.  I am on temazepam for my TMJ disorder, temporarily, to help me relax at night.  I still have pain, so I don't think it is helping much.  The one difference I have noticed is that I am dreaming.  I have had multiple head injuries & lately, for a few months, I have either not been dreaming or not remembering at all upon awaking.  So it is interesting to be dreaming again.

I used to lock both my thumbs like this is middle school, during typing class, just to mess with my teachers.  Something must be going on with my right hand because I can't do it to that thumb anymore

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